Cystic Fibrosis News Today: Telehealth Added to Latest Digital-friendly NORD State Report Card
Alliance Advisory Board Member the National Organization for Rare Disorders (NORD) has updated its State Report Card to make it more digitally friendly and added telehealth to its categories of rare disease policy issues in a nod to its increased use during the ongoing COVID-19 pandemic. The State Report Card focused on nine policy issues affecting the rare disease community, including Medicaid financial eligibility, medical nutrition, newborn screening, prescription costs, rare disease advisory councils, step therapy, and — for the first time this year — telehealth. According to Heidi Ross, acting vice president of NORD, “Rare disease patients have appreciated having the option of telehealth and so we feel like it is important to permanently and appropriately integrate telehealth into our health care system.”